Friday, June 22, 2012

Diaphragm Pacing System


**UPDATE** We just received an approval letter from the insurance company! We couldn't be more grateful for all who have advocated on  behalf of my mom. We are waiting to hear from the surgeon to get things scheduled. As always, I will post when I have the info. Much love, Tara.
 

I’ve been meaning to write this post for 2 months now… I can’t believe how much time I have let pass. By now, we have had plenty of time to process the information we received regarding the Diaphragm Pacing System. (DPS) I found this fantastic article that explains the dynamics of the system. It’s an interesting read especially if you aren’t familiar with it. 

image credit

In the beginning of May, mom went into the clinic for a day filled with testing. I was not able to attend the appointment with her but my aunt so graciously offered to go with her for support. Although, the testing was extensive and exhausting we were so grateful to find out that she is the PERFECT candidate for this procedure. This system is still so new and there is very little research and information regarding the future effects of the procedure. Regardless of the outcome we believe that the benefits outweigh the risks. To know that mom could be on the cutting edge of science, to pave a way for future patients to have a greater quality of life, is an incredible opportunity.

So, where do we go from here? Mom’s entire case history has been sent to the insurance company for approval. Her doctor personally met with the man responsible for making the decision. If the insurance company denies her case the next step is to plead her case to the hospital board. This procedure has only been performed twice before in the state of Arizona. It is still so raw that consent forms, legalities and the like are still being written.

So, how can you help? Please pray with us that a decision would be made quickly. Pray for wisdom and peace for all parties involved. Believe with us that this procedure will give mom greater rest and strength… that a ventilator would be prolonged even longer and that she would be able to handle the procedure with no complications.

We believe that even in this crazy trial that God has a plan and a purpose for my mom. He has placed her exactly where she needs to be and He is providing more than we could have ever imagined. He is helping us walk through this with grace. We can’t deny that even now, He is using her to bring love and grace to those around her. 


1 comment:

  1. Tara,

    That is so exciting for ya'll. It will be neat to see how much it will help her:)

    ReplyDelete