Wednesday, September 21, 2011

Talents to Share

I am so passionate about finding a cure for ALS. There are many days that I sit in wonder and amazement at the discoveries that continue to surface. I find myself daydreaming about the conversations that take place in the lab. Do those scientists really understand the value of their work? Do they feel the same urgency that PALS (people of ALS) do? I know that working in a lab full of test tubes and petri dishes is not glamorous. The days can be long and frustrating with little recognition. But, on the other side of the spectrum- those labs offer hope. They offer a future and relief. They offer perspective and propel us to dig deeper and fight fiercer.

Each of us was created with talents to share and gifts to pour out on others. I am so thankful that science and research is God given gifts. That in the midst of a raging storm there is a calm serene setting waiting on the other side. I am grateful for people who are living out their calling. I am grateful for the sacrifice and devotion it takes to fight such a vicious battle.

My gratitude may never reach the ears of those longing for a cure… but, my prayer is that they would know peace. That they would marvel in the talents they were given and know beyond a doubt that their efforts to fight ALS with science are not done in vain.

I know our prayers for a cure are heard. I also know that in everything there is a season…that my timing and God’s timing are not always the same. But, I strongly believe that our prayers for a cure will be answered-someday- and my only hope is that my mom will live to see that day.

…These articles were published recently regarding research within the ALS community…

Wednesday, September 7, 2011

Joy and Respite

These last couple of weeks have been filled with joy, peace and an incredible respite from all things ALS. We have welcomed this season of change with open hands and open hearts. The drama and pain that filled each of us as we watched mom deal with the peg tube was challenging and sad. But, I believe there is "joy" that comes in the mourning. Joy that can't be explained. We are embracing it with everything we have. 

Mom has found a new energy! This past week we were graced with who we have always known and loved. We spent many days laughing, eating together (yes, mom has been eating- real food... it's amazing!) playing games, and shopping.... without the scooter! :)   

I believe that healing comes in all forms. I believe that God grabs a hold of you when you can no longer walk on your own and I believe that he gives you exactly what you need at exactly the right time. This week... we found healing. We still have a huge mountain to climb- but, the grace and rest he gave us this past week was healing in a whole different light. Emotionally we are resting. 

I recently discovered this song  by Jon Foreman and wanted to share. 

God is my shepherd
I wont be wanting 
I wont be wanting
He makes me rest 
In fields of green 
with quiet streams 
Even though I walk 
Through the valley 
of death and dying 
I will not fear 
'Cause you are with me 
You are with me 

Your shepherd Staff 
Comforts me 
You are my feast 
In the presence of enemy 
Surely goodness 
Follow me 
Follow me 
In the house of God, forever