Reflection: One Year of ALS
I am a firm believer that there is a reason for everything. That no detail in our lives is a mistake. I feel nothing but joy knowing that Ryan is a gift. That he was given to us at exactly the right time for a specific purpose. Mom is progressing slowly and because of that she is able to know and love on her grandson. There is an incredible bond between these two.
|Mom with Ryan in the NICU|
|Mom in Hawaii 1/21/11|
We've celebrated many holidays and family firsts. We've grown so much closer as a family unit-if that was even possible.
ALS is a disease known for no time. When told your life expectancy after diagnosis is 3-5 years it can easily weigh you down to know that one year has passed you by. But- we refuse to let this milestone bury us. We stand in complete gratitude and awe that we were given such an amazing year! A year of life- hope, love and miracles.
None of us are guaranteed tomorrow. This life is not our own. Thankfully- there is complete healing- peace and hope after this life. There is an eternity of grace and passion waiting for us. A set of arms ready to welcome us to a place of complete glory.
We rejoice in this trial- although, so very difficult- because we know there is something greater! One year down is not defeat. One year down is a triumph and a blessing!!